Saturday, 26 September 2015

26 Sept 15 ... #my life in a bag

bag contents most recently
This one is for the Girls....
It has been a long year!  We have settled into Brendan's treatment at home and things are going well. The other day as I unpacked our overnight bag, which has sat on our bedroom floor on and off - but mostly on, since June last year, I thought I would tackle the task of cleaning out my handbag too. 

As I up ended the contents onto the floor; it occurred to me that at every stage of my life, what was in my bag has told the story of  where I was at a particular point in my life. 

How on earth do men get through their day with just a wallet in their back pocket? 

I wish I had taken a picture at each stage... from memory, the main contents of those bags from years gone by went something like this...

Teenage years... 2 bags:
Bag 1: School port (yep.. a blast from the past, Globite)
  1. Books
  2. pencil case
  3. wallet
  4. lip gloss (Vaseline was the go to lip gloss of the day)
Bag 2: Beach Bag
  1. Coconut tanning lotion (or a concoction of baby oil and brown vinegar)
  2. Lip gloss (Vaseline)
  3. Towel & loose change
  4. Dolly/Cosmo magazine & maybe a small radio.
Life was at its most carefree.

20's/ Early 30's ...2 Bags: 
Bag 1: Work Bag
  1. Wallet
  2. Make up bag (containing real lip gloss as now I could afford it :) )
  3. Half empty bottle of coke
  4. Change of underwear in case I decided to stay in town after work
Bag 2: Large Purse/ Small Bag for nights out
  1. Lip gloss
  2. Real actual money, as in Cash
  3. ID
I don't appreciate the little things as much as I should have...too busy (or so I thought) with work and enjoying a hectic and fun social life :) 

Late 30's/Early 40's ...2 bags: 
Bag 1: Nappy Bag
  1. Everything a baby x 2, could possibly need
  2. Hotwheels cars
  3. Half eaten morsels of food that may be needed later, but were usually found two days down the track still wrapped in a napkin...Tyra Maloney!
  4. Camera
Bag 2: Handbag
  1. Nothing...because everything stayed in the nappy bag and it went everywhere!
All of my dreams have come true, I am content, happier and busier than I have ever been before.

Late 40's to 50...  2 bags:
Bag 1: Huge handbag
  1. Too many items to mention, including everyone in the family's coat, if its winter time. 
Bag 2: Large Purse or Small Bag (for that rare lunch date or night out, or when at the hospital and i have to go up the street, not wanting to lug the big bag with me - I have resorted to a bag inside a bag!) 
  1. Lip gloss
  2. Cash/Credit/Debit Card
  3. ID
As my family faces our biggest challenge, I am super busy, at times extremely stressed but also very happy. I love my family and I now understand what truly makes me happy! Life's good because life - is good.

So I am interested to know ...what does your bag/s say about your life today, and how different is it from the one you have carried as a teenager, a twenty something, a Mum and or Career Woman or a Retired Goddess!

Life's Good, Hope is Limitless
heart emoticon xx

You can find more information on Sarcoma Cancer by following this link: sarcoma.

Thursday, 17 September 2015

17 Sept 15 ... what does Deer mean

Brendan and I were tidying up behind our back fence today, when a deer honked at us. We turned to see its backside disappear into the bushes, and then for some reason it did a sharp turn back toward us, so that it could leap into full view, before taking off into the bush again. We looked at each other a bit gobsmacked, until one of us said “Deer!” 

Of course I needed to find a metaphysical explanation for this rare sighting, as you don't see many deer in our part of the world, especially not in our almost backyard. It is the first time in my life that I’ve seen a deer roaming free. I like what I found.

Deer Symbolism: a totem animal for peace and compassion.
Spirit Meaning: New doors are opening…just as the deer is on a life long journey, exploring new lands and pastures. So are you. The deer leaps high and far, reminding you that a leap of faith is required. This is especially so if you are experiencing periods of great change in career, relationships or life path. The Deer is reminding you to embrace the energy that comes with new circumstance, adventure and the doors that are opening for you now. Let the Deer walk beside you as you take its gentle, peaceful, compassionate energy to heart. Know that when you leap, a net appears… let go of old ideas to allow you to move forward with new. You are being guided in the right direction.

This is normally a post I would write on Callie's Quiet Room and Reiki Practice, but I have added it to the Story Of Us, as on Monday Brendan started his new Treatment Plan, and is now taking his Chemotherapy at home. A whole new adventure as the next step in this part of our journey begins. Four days in, and so far everything seems to be going very well. 
I am taking our Deer sighting today as a very positive sign,

Life's Good, Hope is Limitless
heart emoticon xx

You can find more information on Sarcoma Cancer by following this link: sarcoma.

Monday, 14 September 2015

14 Sept 15 ... Managing Cancer

Last Saturday was a bit of a Brendan Maloney milestone, as he set out with the family: myself, our kids, my sisters Sue and Deb, Debs husband Andy and their kids, along with many other friends and wonderful people in our community, on a walk to support a little missing boy and his family.

Brendan hadn't walked this far on his new prosthetic leg before. It wasn’t going to be a fast walk, but it felt great to be walking along the riverbank together on such a beautiful day, an emotional day for sure, for many reasons.

What we weren’t prepared for was the heat, and the difficulties of the dance that sweat and a prosthetic leg will do. 

Learning to walk again presents its challenges. Up hill, down hill and uneven surfaces all require focus and concentration to negotiate the path ahead, at least in the early learning phase. Hopefully as time goes on it becomes second nature. Add to that a lovely layer of sweat between Brendan’s leg and the silicon sock that his prosthetic leg is attached to, and you have a leg that wants’ to spin around, fall off, or both.

As we reached the half way mark, he had to strip off to his jocks and wipe his leg and the silicon sock dry to try and fix the problem. our son Baden not leaving his side. The comment of the day came from a mate of Brendan's, who had stopped to lend a hand. “I saw you strip off and thought, I’m going to get myself some crutches. You look fit man. I’m glad my missus wasn’t there to see that!” It was very funny. 
Bren completed the walk, with his mate and family finishing it with him. 2.5 km walk, tick!

At his next amputee clinic,  he found out that there is an antiperspirant spray available, that others use when playing sport etc, so next time we’ll be prepared with that and a towel. It’s all trial and error.

Today is Chemo day again. Treatment at home, all going well, is where we want to be. Yet getting the treatment started was not as easy as we thought it might be. Or, as easy as I thought it might be. I thought that eliminating the infusions, blood work and hospital, would make the whole process easier. But just for today, it didn’t really.

Taking those 4 tiny pink tablets was a tough ask. Something he had to phsyc himself up for, not so much because they were going to make him sick, although I am sure that was part of it, more so that this was the day that he takes on another new normal, and all that that entails.

Below are the questions we asked and the answers our beautiful CNC provided, to let us know what that new normal would be, moving forward, for the months/years ahead: (depending on how far away that cure for this cancer is…because we know it’s coming :) )

Q: Will this medicine compromise his immune system?
A: He will have a lowered immune system, but not to the extent he has previously experienced with past iv chemo’s

Q: If yes, will it be compromised for the entire dose? 
A: As long as he is on any form of chemo, immune compromised will be a risk. Should something occur, he will need to be treated accordingly. This can be done through the GP.

Q: Will he be toxic; as per previous chemos, for a period of time /whole time that he is on the tablets? 
A: Yes, he will be considered cytotoxic and it is highly advised to continue with the same practices you have been conducting in the past

Q: If yes does that mean that we need to be careful with the kids using our bathroom, or when I'm cleaning the toilet etc? 
A: Yes

Our understanding is that if Brendan can tolerate this treatment, it will be ongoing, and will hopefully continue to manage the disease for as long as necessary. Giving us hope; that with time a more successful treatment will come along. There are advancements being made all the time. We never know what’s around the corner.

So things are about to get busy again, and I have a couple of requests:

  1. If you are going to pop around, we’d love to see you, but please ring first so we can let you know if it’s a good day or a bad day.
  2. If it’s a good day; we have a hand sanitiser at the front door that sometimes even I forget to use, so let’s remind each other to use it.
  3. If you feel off colour, we’ll see you another day.

Thanks Guy’s, your ongoing positive thoughts and prayers are an absolute blessing to us, we take them all on with much love and gratitude, sending them back in kind,

PS: I will be taking a little break away from Callie's Quiet Room & Reiki Practice for a couple of weeks while Bren settles into this Chemo, and may not be checking PM's regularly, but can be reached by txt   
smile emoticon

Life's Good, Hope is Limitless
heart emoticon xx

You can find more information on Sarcoma Cancer by following this link: sarcoma.

Sunday, 6 September 2015

6 Sept 15 ... Fathers Day.

Photo Credit: Meegan Malouf :)
Happy Fathers Day to this guy. You are my one in a million, and our pair are glad that you are theirs.

Our lives changed the day they came into it, in too many wonderful ways to list, not for any other reason than we were ready and willing for it to.

Your selflessness as a Dad is something that I am incredibly grateful for; something I know our kids will look back on one day, and understand what a gift you give them by being completely present in their lives. 

They know and will always know that there is nothing in this world more important to you then them. That knowledge will allow them to go out into the world with a great sense of self confidence; and more importantly, an understanding of what it feels like to be completely and unconditionally loved. Of all the things you can give a child, they are the most important.

As their Mum I thank you for being the Dad and the person that you are.

You Rock Baby!

Cal xx

Lifes good and hope is limitless.
You can find more information on Sarcoma Cancer by following this link: sarcoma.

Tuesday, 1 September 2015

1 Sept 15 .... Spring

"I believe in process. I believe in four seasons. I believe that winter's tough, but spring's coming. I believe that there's a growing season. And I think that you realize that in life, you grow. You get better." - Steve Southerland
Spring is here ... smile emoticon xx

The perfect time to look ahead while feeling very grateful for how far we have come ...

Life is good and hope is limitless.
Cal xx
You can find more information on Sarcoma Cancer by following this link: sarcoma.